Brainstrust: The Brain Cancer People

Brainstrust: The Brain Cancer People

By Evaheld

Braintrust U.K. believes in a world where people with a brain tumour and their loved ones are involved, resourced, confident and connected. A world where people with a brain tumour are living the life they want, to the best of their potential, because they are people first, and patients and carers second.

Find out how collaborations and partnerships are helping us provide the best support possible.

They provide personalised support and offer resources to assist individuals with a brain tumour as well as their loved ones live the life they want after their diagnosis. Brainstrust works with people in the clinical setting to secure the best possible care for people with a brain tumour as they campaign to solve real issues, knowing the challenges people with a brain tumour face.

Brainstrust’s Story

Brainstrust is a brain tumour charity founded in 2006 with the goal of helping people with brain tumours feel less afraid, less alone, and more in control. Over the years, brainstrust has provided support and resources to thousands of individuals and their families. In this blog post, we will explore the impact of brainstrust's work last year and highlight some of their recent news and events.brainstrust is a brain tumour charity founded in 2006 with the goal of helping people with brain tumours feel less afraid, less alone, and more in control. Over the years, brainstrust has provided support and resources to thousands of individuals and their families. In this blog post, we will explore the impact of brainstrust's work last year and highlight some of their recent news and events. Brainstrust was founded by Helen and Peter Bulbeck with the goal of helping Megan Hill and others like her gain access to an intraoperative MRI brain surgery in the United States.

Helen was diagnosed with a brain tumor in 2001, and throughout her treatment, she and Will struggled to find the information and support they needed to navigate the complex world of brain cancer. Determined to make a difference for others facing similar challenges, they founded Brainstrust with a mission to provide the support and information they wished they had during their own journey.

Since its inception, Brainstrust has grown to become a leading voice in brain tumor support, offering a range of services to patients, families, and caregivers. From providing personalized support and information through their helpline and online resources to funding groundbreaking research and advocating for improved care and support services, Brainstrust is dedicated to improving the lives of those affected by brain tumors.

One of the key initiatives of Brainstrust is their "Brain Box" service, which provides newly diagnosed patients with a comprehensive information pack containing everything they need to know about their diagnosis, treatment options, and where to find support. This service has been instrumental in empowering patients to make informed decisions about their care and has been widely praised for its impact.

In addition to their support services, Brainstrust is also committed to raising awareness about brain tumors and the challenges faced by those affected by them. Through their campaigns and events, they strive to educate the public and policymakers about the importance of early diagnosis, access to specialist care, and the need for more research funding.

Brainstrust's impact can be seen in the countless lives they have touched and the positive change they have brought to the brain tumor community. Their story is a testament to the power of determination, compassion, and the belief that together, we can make a difference.

The Impact of Brainstrust within the Last Year

Over the past year, brainstrust has made significant contributions to providing support and assistance to individuals affected by neurological conditions:

1. Support Specialists Engagement

2,339 individuals reached out to our dedicated team of support specialists for guidance, advice, and assistance. These interactions have played a crucial role in helping individuals navigate the challenges associated with neurological conditions.

2. New Access to Support

825 new individuals were able to access our comprehensive support services. This increase in outreach signifies the growing recognition of the valuable resources and assistance that brainstrust offers.

3. Distribution of Brain Boxes

Individuals received a Brain Box, a unique and personalized resource kit designed to aid and support those managing neurological conditions. These Brain Boxes have been instrumental in providing practical tools and resources to individuals in need.

4. Support Events

Throughout the year, brainstrust organized and hosted 134 support events. These events served as platforms for individuals to connect, share experiences, and gain insights from experts in the field. The impact of these events on fostering a sense of community and support cannot be overstated.

5. Online Information and Support

An astounding 110,928 people accessed the wealth of online information and support provided by brainstrust. The online platform has proven to be a valuable resource for individuals seeking knowledge, advice, and support related to neurological conditions.

6. Online Community Building

3200 individuals actively participated in our online community, offering support, empathy, and understanding to one another. This digital space has been pivotal in creating a sense of belonging and reducing feelings of isolation among individuals facing neurological challenges.

The impact of brainstrust in the past year extends far beyond numbers and statistics. It embodies the spirit of compassion, empowerment, and community support that lies at the core of our organization's mission.

Advocacy on community engagement, awareness growth and support

Brainstrust offers various ways for individuals and communities to showcase their support and to create a meaningful impact towards the lives of those suffering from brain cancer.

One of the simplest ways to get involved is by making a donation. Your financial support allows Brainstrust to continue providing vital services, such as their helpline, online resources, and Brain Boxes for newly diagnosed patients. Every donation, no matter how small, helps make a difference in the lives of those affected by brain tumors.

Another way to support Brainstrust is by fundraising on their behalf. Whether you're organizing a bake sale, running a marathon, or hosting a charity event, fundraising is a fun and rewarding way to make a positive impact. Brainstrust provides plenty of resources and support to help you plan and promote your fundraiser, making it easy to get involved.

If you're looking to make a more hands-on impact, consider volunteering with Brainstrust. From helping out at events to providing support over the phone, there are many ways to volunteer your time and skills to support their work. Volunteering with Brainstrust is a great way to make a direct impact on the lives of those affected by brain tumors while also gaining valuable experience and making new connections.

For those looking to make a long-term commitment, consider becoming a Brainstrust Ambassador. Ambassadors play a crucial role in raising awareness about brain tumors and the work of Brainstrust in their communities. They also represent Brainstrust at events and help to spread the word about the charity's services and campaigns.

No matter how you choose to get involved, your support will make a real difference in the lives of those affected by brain tumors. By supporting Brainstrust, you're not just helping to fund vital services and support - you're also helping to raise awareness, improve care, and ultimately, find a cure for brain tumors.

The Partnership between Evaheld and Brainstrust U.K.

Evaheld is a legacy and care planning app that empowers people to enjoyably create all sorts of legacy style content for their loved ones and future generations, as well as easily future-proof their voice to ensure better wellbeing outcomes. People are supported through the entire creation process, with the world’s most comprehensive suite of content types and in-browser video, audio and written content creation (or uploads), and of course secure lifetime storage. People also have full management over their recipient, privacy and future delivery preferences, safeguarding their privacy, independence, and connections to loved ones today, and into the future.

Evaheld is a proud partner of Brainstrust U.K. Through the inspiring story of Helen and Peter, Evaheld aims to offer continuous support through their own mission in empowering human connection, leaving one less word unsaid at a time. Like Brainstrust and their ongoing support for those with brain cancer and ensuring these individuals have and feel the support from their loved ones, Evaheld aims to provide further support to the people around the individual. Understanding the impacts of brain cancer, we want to ensure that these individuals are remembered the way they want to be remembered if it leads to that unfortunate scenario, and are still able to express their love and legacy through the opportunity that Evaheld can provide them with.

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